Dear Joy. You have commented on my blog posts in the past. I invite you to explore my most recent series. It is titled “Oh No I’m a Caregiver – Dementia – Our Cautionary Story.” These posts are of special significance to me. Dementia appears to be a reality destined to assault all of our lives in one way or another eventually. I believe that the story I have to tell – through my initial post and others yet to come at – has valuable insights to offer. For this reason, I hope you will read it and pass it on to others so that they might benefit from what I am learning and from those insights.

For example… My husband Jonathan, who has recently been diagnosed with dementia, is actually quite fine at this early stage. He is engaged in lots of cognitively powerful activities. He writes original memoir pieces that are very good and says this is the result of sitting in on so many of my writing workshops over the past forty-five years. He now finds more joy in writing than the drawing and music that were his usual creative pursuits in the past. This is good because, as you know, portraying characters and composing scenes require a deep level of focus and detail concentration which is very beneficial for him. He also loves jigsaw puzzling – the 1500-piece variety. Again much concentration is required plus he has fond memory associations of doing puzzles with his mom when he was a boy. He also reads a lot – challenging books, as well as his favorite New York Times articles. He does regular physical exercise and has also begun gardening at our church which has a large planted space in sore need of attention. Medically, he is taking a basic drug that has disappeared his brain fog for the timebeing. We also have excellent medical professionals on our team and on our side.

Dementia is not like the tv commercials portray it to be. Their purpose is to ramp up fear and sell very expensive, very dangerous drugs. There is a long, gradual period before extreme changes begin, and the aggressiveness these ads emphasize can often be mitigated with simple mood medications that are harmless and affordable.

Meanwhile, there is a real-life story to be told here of real-life experience. I hope you will read and share it. Dementia is a reality for many of us and, unfortunately, promises to be a reality for many more. Truth is our best armor against being cast into despair by the prospect. I hope to add a little to that sustaining truth. Dementia is one of the many ways all of us will evolve from this life into whatever may lay beyond. Passing on is our universal destiny. Some of those passages involve discomfort and unpleasantness. We can perhaps be a bit better prepared if we understand realistically what to expect.

That is what our story – Jonathan’s and mine – is meant to do. Help others – in an honest and caring fashion – to be prepared. Love and Blessings. Alice

I love the name Joy and you do certainly embody it. Charging forward with power in gratitude. What an image. What a prospect. Happy New Year to you to Joy. And thank you for the joy you are.

Hi Again Kathy. I love the image of plowing through. I picture one of those old-fashioned forked plows breaking the clods of dirt and making a furrow where seeds can be planted. Then the planter tends the seedlings but also trusts the elements to cooperate. We have to do all of that as writer. Bread down the clods. Scatter the seeds. Allow the forces of our own writerly imaginations to shine and nurture our work so it can grow. But it is hard work. Perhaps not backbreaking in the same way as the plowman’s labors may be – though I’ve risen from the desk aching many times. Sometimes however we must break our hearts to do our work. To be more specific – we must break our hearts open and let our true stories pour forth. Here’s to a New Year of breaking open and pouring forth for all of us. Alice